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Eggers Vs. Armstrong…. CONFIRMED

March 12, 2012

We have confirmation. Mr. Armstrong has accepted the challenge to race me in a 50 yard kick, two lengths of the pool… kicking…..  proceeds go to Teens Living With Cancer and The LiveStrong Foundation. Welcome to the DUEL IN THE POOL.

(oh god what have I done?)

In all seriousness (choke) I came into this thinking it would be amazing if we could raise a thousand dollars. To this girl that is big cash. Mr. Armstrong seems to think we can raise one hundred thousand. Dollars. American money.

Do you think that’s possible? In 7 weeks???????? I didn’t think it was possible to get this far.

Okay….. first things first…….. Jimmy, get fifteen cents from the drawer please!!!!!!

Phase I: The Fundraising, begins TODAY

A very big thank you to Jeff Matlow of IMATHLETE for his help guiding us through establishing our fundraising page. In just a few days we will make a page live.  And when we do we will share that link right here and just about everywhere. Thank you in advance for your patience, we’ve been working all weekend on it. It’s not as easy as we think!

Phase II: The event, more secure details in one week

We will race on April 28th at 4pm at Alumni Arena, at the University at Buffalo, prior to the speech Mr. Armstrong will be giving that evening at 7pm. Admission prices will be low and fair and will count as donations to Teens Living With Cancer and LiveStrong. We have a vendor from Buffalo who will be donating the production of T shirts to the event, and we will sell those online.

As I said Phase II will take us a bit more time to set up, so give us about a week.

Media Inquiries: We ask that all media inquiries go through our Social Media Director Charlie Abrahams. He can be reached at Charlie@qt2Systems.com.

THANK YOU

Not only would we like to thank Mr. Armstrong and LiveStrong for their agreement to jump in to all of this we’d like to thank the following…….

QT2 Systems: The coaching company I train and coach with, Jesse Kropelnicki of course has set up a specific training schedule for this event, Charlie Abrahams (our social media director) for always supporting my “what if’s”, and to Pat Wheeler for helping me create this kick off thing to begin with.

Score-This: To Rich Clark for listening, supporting this hare-brained idea.

Pumpkinman Triathlon: Thank you to Kat Donatello for your unbelievable support and encouragement.

To my husband and son: I came home from that run last Wednesday morning and told my husband of my idea. Without hesitation he said “Go for it”. He’s enabled me to work on this project all weekend long, without a doubt that we could pull it off. And to our amazing son, who is about to learn one of the most powerful lessons of his life.

The biggest thank you however……… goes to Lauren, the director of Melissa’s Living Legacy / Teens Living With Cancer. Losing a child to this disease is too big a price to pay for anyone. This foundation wouldn’t even exist without her and the grief she suffered over the loss of Melissa.

The Teens who are in this program…… this is all about you guys. Last Tuesday night you all laughed when I told you I was going to do this. But what you didn’t realize is that… you taught me that anything is possible. Looks like we may not need to be using water filled milk jugs for weights anytime soon!!!!!!!!

All right everyone…… I will share the link for donations the MOMENT it is live. I will put it at the top of this blog, in addition I will put it up to the right over there where it says “Duel in the pool”, I will post it to FaceBook and Twitter…… and share as many details as possible as soon as I have them

I can’t thank you enough for the support in making this happen. This was the direct result of community.

Now…… remember why we are doing this. This is not about me, this is about our Teens and the girl….. who began all of this. Melissa.

Not only did Melissa face Cancer with determination and tenacity, she did the same thing with death. In the end she….. not even 25 years old….. had the guts to stop all treatment and live her final days the way she knew she could. Would I have that bravery? Would I be able to make that decision? I don’t even know. What I do know that if Melissa was here and someone asked her if she thought she could raise 100 thousand dollars, I have a feeling she’d smile and say….. of course we can.

Melissa’s Story

In April of 1998, Melissa was a typical, high school senior preparing for the Senior Ball, graduation, and life’s many opportunities when she was diagnosed with Myelodysplastic Syndrome, a rare bone marrow malignancy. She had just been accepted to the University of Pennsylvania where she dreamt of pursuing a career in advanced practice nursing.
Sadly, Melissa Marie Sengbusch died on June 22, 2000 at age nineteen after living with cancer for two years. She became yet another statistic in the tragedy we know as adolescent cancer. The way in which she lived life and ultimately faced death is a story of extraordinary determination and celebration of the human spirit.

Myelodysplasia strikes fewer than five in one million Americans each year. Statistics continue to be discouraging with survival rates averaging only about twenty percent. Following diagnosis, Melissa was no longer typical but was determined to minimize its impact on her life. Burdened with weekly blood tests and disquieting uncertainty, she told no one about her illness as she continued to finish high school. She wanted no special treatment, no extra accommodations. She just wanted to be a normal kid living a normal life.

With deep disappointment, Melissa was forced to defer enrollment at UPenn and began intensive chemotherapy on July 28, 1998. Despite the debilitating effects of her treatment, Melissa’s spirit never faltered, her focus never blurred, her passion for living never dulled. She was determined to stay ahead of the game. Over the course of her treatment, while undergoing aggressive chemotherapy, total body radiation and other serious medical procedures, she enrolled in five courses at the University of Rochester. Weakened by weight loss, nausea, and other side effects, suffering the insult of hair loss and the trauma of brain seizures, she would complete all courses with a 4.0 GPA.

Her chemotherapy continued through December 1998. By February 1999, Melissa was officially declared in remission but the celebration was short-lived. Within six weeks, a biopsy showed she had relapsed and bone marrow transplant was now the only viable option. A desperate donor search, including a local donor drive, was begun – to no avail. Time was running out but Melissa was still living her life. Knowing she would once again lose her hair, she laughed and said,

“If I’m going to lose it again, I may as well see how I look as a blond,” and bleached her hair.

A cousin was finally identified as the best possible donor even though the match was far from perfect. The transplant was scheduled for June 21, 1999 with sobering expectations that Melissa would suffer serious complications due to the unmatched donor. To everyone’s delight, Melissa breezed through transplant, leaving the hospital in three and a half weeks instead of the anticipated six to eight. She was going to be well. She was sure of it.

However, a cerebral infection resulted in a severe seizure in the fall of 1999 leaving Melissa with no speech and little neurological functioning on her right side. A nightmarish period followed with Melissa unable to speak, walk, or even feed herself. A brain biopsy confirmed the preliminary diagnosis of toxoplasmosis, a rare parasitic infection. After three weeks of intensive therapy, she began to regain functioning.

Barely able to walk, speaking with slurred speech, unable to read because of double vision, and unable to write, Melissa declared herself fit to return to class at the U of R. For the next six weeks, her father accompanied her to every class, leaving her wheelchair in the hall, so she could walk into the lecture hall unassisted. By mid-semester she was going by herself and achieved A’s in Organic Chemistry and Political Science.

By December, everyone believed she would prevail and plans were made to finally go away to college. On January 5, just five days before leaving for UPenn, Melissa had what was supposed to be a final bone marrow biopsy. Within one hour, however, the cruelest blow of all was dealt. Once again, Melissa had relapsed. There were no options. There was no hope. There was nothing left to do. Nothing except live – which Melissa continued to do with passion. Throughout all the challenges, Melissa viewed herself as always living, never dying. She knew she would eventually die, as would we all. While she valiantly fought the disease, she did not fight death. She accepted that she could not know the when or why. But until she died, she intended to live.

She decided to go to UPenn anyway, saying,       “If I don’t go now, I never will.”

So off she went to the university she had so longed to attend. For eight short weeks, she reveled in just being a “college kid”. She went to class, ate in the dining hall, studied with her friends in the dorm and even went to a few fraternity parties, quickly earning the respect and admiration of all who knew her. While there, she underwent an experimental treatment that offered some small hope, leaving the hospital on pass to attend class. She required transfusions every day, often twice daily, frequently sitting in the Emergency department at 2:00 a.m. doing her homework so she would be prepared for class in the morning.

By spring break, Melissa had become very sick and had to return to Rochester. A biopsy showed that the experimental treatment had had no effect on the disease now ravaging her system. Melissa now made her final and most courageous decision – to stop all treatment. She had come to accept that her time on earth was very limited. With continued chemotherapy she knew how sick she would be and opted for quality of life versus quantity.

Impressed by her courage and determination, the University of Pennsylvania presented Melissa with her Bachelor of Science in Nursing degree, a rare tribute bestowed upon those deemed worthy of being a Penn alumna despite being unable to complete their coursework. In Melissa’s honor, the University established the Melissa Sengbusch Inspiration Scholarship for which Melissa proudly established the eligibility criteria.

In the three months until she died, Melissa never stopped living – a “joyous, turn your head to the sky and shout” kind of living.

She took a glorious vacation with her family to the Grand Canyon, rode a hot air balloon over the Arizona desert, planted an herb garden, crocheted an afghan and took a pottery class at the local art gallery, all while writing profound poetry and prose in her journal. She said goodbye to her friends and family. She made plans for her death and burial, donating her body for medical study. Before she died, she asked a promise of her mother.

This is for you Melissa

“If you have learned anything from me through all of this, do something with it to make a difference – to make things better.”

Melissa’s Living Legacy Foundation is dedicated to Melissa’s ever-present spirit and is committed to “making things better” for other teens living with cancer.

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12 comments

  1. amazing.awesome.
    love it, love you and love what this stands for….
    be proud of this david vs. goliath moment and all the good it is going to do.


  2. there should be some kind of law against making people cry the first Monday of daylight savings time.


  3. You’re an amazing human Mary…I still want that size 30 Livestrong speedo!


  4. Amazing!


  5. On behalf of the board of Melissa’s Living Legacy, thank you for all you do for TLC!


  6. Another amazing event form an amazing person.


  7. So awesome! I can’t help but have a huge smile on my face that this is really going to happen and the money that is going to be raised on behalf of Melissa’s Living Legacy. So thankful for athletes, like Lance Armstrong, who not just represent a cause but believe in it heart and soul. And, that he- unlike many others- is still down-to-earth enough to listen to the Retweets and FB postings that everyone shared to help make this happen. 🙂


  8. He is so right Mary – you can raise $100,000! And as soon as your page is live you’ll have my donation for sure!


  9. This is just wonderful!! Can’t wait to see you surpass your new 100k goal.


  10. Mary!! Eggers!! Woo!! Hoo!! This is so amazing!! wait a minute?!?! If you are in the pool…. Who’ll be announcing over the PA? I volunteer!!!

    -Pete


  11. I’m not worthy to know you or have knowledge of this competition. You and Lance are both awesome people!

    P.S. Mop the pool with him.


  12. So,who said, “Oh God, what have I done?”. You or Lance? I’m betting it was Lance. Make him a bridesmaid Mary! You will have our full support!
    Mi,e & Carrie



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